ambers story part 2

To day Amber finished the Avernue pre school for the last time.in the time she has been there she has made some amazing progress.Everyday is a challange for Amber her pre school went out of there way to help Amber And I carnt thank Diana and Ambers other teachers enough for all they have done.I am soo proud at how hard my daughter trys.But at the same time it breaks my heart to know Amber could of lived a diffrent life free of all her problems.SBS is perventerbal plsease invite people to join Ambers group so we can keep spreading the word and making more people awear of sbs .Thankyou to every one who has joined and taken time to read Ambers group. This week Amber started School. For Any parent and child the first day at school is scary, but for Amber we had all the other addid worrys that a child with SBS brings.Ambers school are being great and are helping Amber in every way possible to settle her in.She has a sn stament in place.I am very proud of my little girl for getting this far.I would just like to thank everybody for joing Ambers group and all your supporting posts.When i started this group to tell Ambers story and raise awareness for SBS, I never imangend that My Daughters story would reach so many people and help to make people aware of sbs and to meet others who have been threw this.This means a lot that are message is getting out.Please keep inviting othere people to join and cheak out other groups for SBS as a much awareness there is the more chance of saveing a babys life or a life free of problems Thankyou.This week saw Amber have her 4th birthday (2nd June) and when I think of what she has been threw and how far she has come it both breaks my heart and makes me proud of my Daughter as she never gives up and trys so hard in every thing she does.Amber you are so strong my darling and so so beautifull .Happy 4th birthday lots of love Mummy, Katie and RosexxxxxxxxxxxxxxxxxxxxxTo day (28 July) Amber has been confermed to have Swine Flu. This is very worrying for us as with Ambers SBS she does not have the understanding of why she needs meds or to drink at the moment she is very poorly I am hopeing she will start to feel better with the meds and will keep you all posted on how she is doing.Thankyou again for all your support it truly means alot to us in the fight aganst SBS .Amber mummy is praying you make a speedy recovery and are not to effected by this lots of love and hugs my sweet girl xxxxUp date on Ambers swine flu (29 July)Last night we had to have a Dr come out as even with the calpol and ibuphrone her temp was staying at 40.She was also refushing to drink and had vomited badly after i had manged to get Tamiflu into her.The Dr adviced to stop takeing the tamiflu as Amber was reacting to it and was makeing her worse.She spent a restless night with her temp going up and down and has a very nasty cough.To day she has manged to get her temp down a bit wich was enough to get some juice into her and have a bowl of soup.She is now sleeping again she is very scared as with her SBS she has no understanding why she is ill, but I think she understands that im there and am doing my best to get her better. Amber mummy loves you so much and i pray you come threw this ok xxxxxxxxxxUpdate on Ambers swine flu(31 July)Amber woke up today and seems to be on the mend her temp has gone down and shes was able to eat breakfast shes still week and needs to rest but looks like she will make a full recovery from this.We are all so proud of the strengh that Amber has and was able to fight this off.xxxx Amber has now made a full recovery from Swine flu and apart from her ongoing SBS problems is back to being a healthy happy little girl who we are all very proud of xxLEASE COULD EVERYONE WHO IS UK BASED TAKE 5 MINS TO SIGN THE PETITION FOR LIFE INPRISONMENT FOR ALL SBS OFFNEDERS IN THE TOPICS BELOW.THANKYOUTHIS MAY MAKE A DIFFRENCE AS IF ENOUGH PEOPLE SIGN THEN THE LAW COULD GET CHANGED.LINK TO PETITION BELOW ASWELL AS IN TOPICShttp://petitions.number10.gov.uk/SBSISMURDER/